Scheuermann’s Kyphosis: the basics

This is going to be a relatively short post as I have work to be doing and I’ve already been avoiding it all day so I need to get back to it as soon as I can! I think I’ve mentioned Scheuermann’s kyphosis briefly before, so I thought it’s probably time to quickly introduce it. When I was thirteen, I was diganosed with Scheuermann’s kyphosis. Scheuermann’s goes by many names, and sometimes it’s simply referred to as Scheuermann’s, sometimes kyphosis (or Scheuermann’s kyphosis) and often people also call it Scheuermann’s disease, but I prefer to avoid this if I can because a ‘disease’ implies that it is contagious, and this not at all the case! So, I’ll refer to it as Scheuermann’s, kyphosis, or if I’m feeling really fancy, I’ll use both words together.

I was told by my doctor that, in really basic terms, Scheuermann’s is where the vertebrae (the bones in my spine) developed differently. As a result, when the bones are ‘stacked’ on top of each other, they form a curvature in my upper spine. If you look at me sideways on, my back looks like an ‘S’. Now, I was always told that it was probably bad luck to have Scheuermann’s because no one actually knows what causes it. All I can tell you for certain is it’s not at all pleasant. It’s extremely painful, as my muscles around my spine (so the clever ones holding you upright) have to work really hard around my curvy spine.  So, as they’re working really hard, they can get very painful and ‘angry’ (perhaps I have a similiar reaction to hard work!) and thus I live with chronic back pain.

This year, I found out that spinal curvatures and cerebral palsy are linked, and so I think that my Scheuermann’s is due to having cerebral palsy. I can’t say for certain, but it seems rather likely. As well as pain in the thoracic (upper) part of my spine, my lumbar (lower spine curves inwards to compensate, and my cervical (neck) spine also curves to compensate. So as you can probably gather, I’m dealing with a lot of angry bones and muscles!

There’s no cure for Scheuermann’s, and my curve measures 70 degrees (or at least it did when I last had it measured). To put that into perspective, a healthy thoracic spine should measure between 25 and 40 degrees. So you could say I’m pretty ‘curvy’.

I did use a spinal brace at the age of 14, but I will be sure to blog about that experience separately. It was an experience to say the least. For now I manage my pain with various methods, including heat therapy, acupuncture, analgesia and gentle exercises. I do have ‘good’ days, and I do have ‘bad’ days, but that’s to be expected with a condition like this. Chronic pain is a really complex subject, and I don’t want to write about it here, but it’s something I live with everyday. For a brief glimpse into chronic pain, check out my earlier post here: https://nosuperhero.wordpress.com/2014/11/13/life-can-be-a-pain-sometimes/

So, that’s it! A speedy summary on Scheuermann’s kyphosis. I’m sure it’ll feature again shortly. For now though, I’m going to attempt to get back to my reading. Today Im reading When We Were Orphans by Kazuo Ishiguro. I haven’t quite finished it yet, but I’m enjoying it!

Until next time,

Heather

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