There’s a little analogy those of us with chronic illness and/or disabilities like to use to try and describe the difficulties living with chronic illness create. This is called the ‘Spoon Theory’, and you can read this (rather lengthy) post by Christine Miserando which – perhaps ironically – takes lots of ‘spoons’ to read and understand (see here).
In simple terms, the idea is that each day you’re allocated a certain number of ‘spoons’. These spoons = energy. When someone is chronically ill/disabled, they use far more energy than an able bodied person (and I recently found out people with cerebral palsy expend between 3-5 times MORE energy than someone without CP. No wonder I’m asleep a lot of the time!).
Thing is, when you’re ill/have difficulty coordinating your body, things become harder to do, and you end up having to prioritise some tasks over others. Getting out of bed and getting dressed/doing teeth might cost me one spoon on a good day. That leaves nine to complete the rest of the day’s tasks.
Getting to uni on the bus and having to stand because there’s no seat: one spoon. Sitting in a three-hour seminar: two spoons. Getting on the bus home: one spoon…and, well, you get the picture.
If I exert myself too much one day, I just know I’m going to regret it the next. And if that’s the case, I might wake up with eight spoons rather than ten.
This can make all manner of adulty-things difficult. Before occupational therapy came round and installed some things to help me around the flat, having a shower for instance could be a real trouble, particularly because not only does my spine hurt/my neck hurt/ my right arm struggle to lift above my head to wash hair etc, but my palsy means my balance can be really off. I have slipped in the shower more times than I care to remember.
This also means preparing healthy, nutritious meals can sometimes be a real trouble. Luckily Drew is a super good cook (though he’d never admit it) and he helps me out more than I can say. However, when I’m home alone, and I have very little spoons, cooking can be a nightmare – and don’t even mention the washing up!
That’s why I thought I’d start a new section on here: Easy Eats (or something like that…I’m trying to be creative but failing rather miserably!). Of course, anyone can make these, but my aim for these posts is to create healthy, (hopefully) tasty, delicious meals easily with as little effort as possible, and I’ll try to include some hints and tips to make life just that little bit easier in the kitchen.
When you’re constantly ill eating well is absolutely essential; and, annoyingly so, a lot easier to say than it is to do. I’m hoping this will be a useful addition to the blog; let me know what you think!
Watch this space!
Hope you’ve had a great Wednesday,